Primary Progressive Multiple Sclerosis
What You Need to Know
Nancy J. Holland, Ed.D., Jack S. Burks, M.D., and Diana M. Schneider, Ph.D.
Publication Date: November 2009
ISBN 13: 978-0-9823219-0-4
Trade Paperback: 160 pages
Size: 6 x 9 inches
Includes Figures, Resources
Health / Multiple Sclerosis
This book addresses the wide variety of physical and emotional issues of people with the primary progressive form of MS. Chapters deal with the nature of the disease and its characteristics, as well as its comprehensive multidisciplinary management. These include medical and nursing care, physical and occupational therapy, social support, caregiver and family issues, and mental health and quality of life.
It is jointly sponsored by the National Multiple Sclerosis Society and the Multiple Sclerosis Association of America, which have made a major commitment to improving the lives of the approximately 10% of the MS population with PPMS. This commitment reflects the realization that this has been an underserved population, and extensive resources are being developed.
ABOUT THE AUTHORS
Nancy J. Holland, Ed.D., R.N., was with the National Multiple Sclerosis Society for twenty-one years. As vice president of clinical programs, she was responsible for the Society’s national professional education programs for health-care providers. She was one of the first nurses to specialize in the care of people with MS in the comprehensive care setting, and is a founding member of the International Organization of MS Nurses. She is the author or co-author of more than seventy MS-related publications, including the books Multiple Sclerosis for Dummies, Multiple Sclerosis: A Self-Care Guide to Wellness, Multiple Sclerosis: A Guide for the Newly Diagnosed, and Comprehensive Nursing Care in Multiple Sclerosis.
Jack Burks, M.D., is a neurologist who specializes in multiple sclerosis. He is chief medical officer of the Multiple Sclerosis Association of America, director of program development for the MS Comprehensive Care Center at Holy Name Hospital in Teaneck, NJ, and president of Burks & Associates Health Care & Research Consulting Group. He was a founder and president of one of the nation’s first comprehensive Multiple Sclerosis centers, the Rocky Mountain MS Center in Denver. Dr. Burks has served on the boards of directors of the American Academy of Neurology, the American Society of Neurorehabilitation, and the Consortium of Multiple Sclerosis Centers, and he is a member of the National Clinical Advisory Board of the National Multiple Sclerosis Society. He has edited two textbooks of multiple sclerosis management, including Multiple Sclerosis: Diagnosis, Medical Management and Rehabilitation, and published numerous scientific articles and reviews.
Diana M. Schneider, Ph.D., originally trained as a neurochemist. She is president & publisher of DiaMedica, which specializes in books focused on a wide range of health-related topics. As founder and publisher of Demos Medical Publishing, she developed an extensive list of books covering a wide range of issues relating to multiple sclerosis, and is currently on the board of the Multiple Sclerosis Quarterly Report and is a member of the Consortium of Multiple Sclerosis Centers. Dr. Schneider has a particular interest in primary progressive MS because her family has been living with the disease for nearly 25 years.
Praise for Primary Progressive Multiple Sclerosis…
Primary Progressive Multiple Sclerosis: What You Need to Know analyzes this more advanced version of multiple sclerosis, which does not let up and offers a more constant loss of function. Outlining treatment and care options for the disorder, the book provides many tips for maintaining a higher quality of life in spite of the advanced version of multiple sclerosis. Primary Progressive Multiple Sclerosis is a choice pick for any with a relative facing the disorder, or faced with it themselves.” — Midwest Book Review
Primary Progressive Multiple Sclerosis: What You Need to Know addresses the wide variety of physical and emotional issues that affect people with this form of MS. This population experiences a steady decline in function without relapses, and disability tends to occur early in their disease course….Chapters deal with the nature of the disease and its characteristics, as well as its comprehensive multidisciplinary management.
The book is jointly sponsored by the National Multiple Sclerosis Society and the Multiple Sclerosis Association of America, which have made a major commitment to improving the lives of the 10-15% of the MS population with the primary-progressive forms of the disease.” — PN